Aibrary Logo
Podcast thumbnail

Uniquely Human

11 min

A Different Way of Seeing Autism

Introduction

Narrator: A nine-year-old boy named Michael, who had autism, had a habit of fluttering his fingers in front of his eyes. His parents and teachers saw it as a meaningless, "autistic" behavior to be stopped. After his beloved grandfather died, Michael’s family tried to explain that his grandfather was now in heaven. Michael listened intently and then asked a question that would reframe everything they thought they knew about him. He asked, "In heaven, are people allowed to look at their hands?" In that moment, it became clear that this behavior wasn't a symptom to be eliminated; it was a source of comfort and joy so profound that he couldn't imagine an afterlife without it.

This shift in understanding, from seeing a problem to seeing a person, is the central message of Dr. Barry M. Prizant's groundbreaking book, Uniquely Human: A Different Way of Seeing Autism. The book challenges decades of conventional thinking, arguing that the most effective way to support autistic individuals is not to "fix" their behaviors, but to understand the humanity behind them.

The Foundational Question: It's Not "What," but "Why"

Key Insight 1

Narrator: The most fundamental shift Uniquely Human proposes is to stop focusing on the "what" of a behavior and start asking "why." Traditional approaches often label actions like rocking, hand-flapping, or repetitive speech as "autistic behaviors" to be managed or extinguished. Prizant argues these are simply human behaviors—strategies that individuals use to cope with a world that feels confusing, overwhelming, and unpredictable. At the core of many of these behaviors is emotional dysregulation, a state of internal chaos triggered by sensory overload, anxiety, or confusion.

The story of Jesse, an eight-year-old boy, powerfully illustrates this principle. At his old school, Jesse was labeled the "worst behavior problem." Unable to communicate his needs effectively, his frustration manifested as self-harm and disruptive outbursts. The school's response was to control his behavior through punishment and isolation, which only intensified his distress. When he transferred to a new school, the team took a different approach. Instead of punishing the behavior, they asked why it was happening. They realized his actions were desperate attempts to communicate. By providing him with communication tools like picture symbols and respecting his sensory needs, they built a foundation of trust. The "behavior problem" vanished. Jesse began to smile, participate in class, and eventually thrived, holding jobs and attending social events in high school. His life was transformed not by fixing his behavior, but by understanding the reasons behind it.

Decoding the Language of Autism: Listening Beyond the Echo

Key Insight 2

Narrator: Echolalia, the repetition of words and phrases, is one of the most misunderstood aspects of autism. It is often dismissed as meaningless parroting, a sign of dysfunction. Prizant reframes it as a vital form of communication and a natural stage of language development for many autistic individuals. To understand it, one must listen with deep attention to the context and the emotion behind the echo.

Consider Eliza, a fifth-grader who, when approached by a visitor, became anxious and repeatedly said, "Got a splinter!" This phrase seemed random, but her teacher knew its origin. Two years earlier, Eliza had gotten a painful splinter on the playground. The phrase became inextricably linked to the feeling of fear and anxiety. When she said, "Got a splinter!" she wasn't talking about a splinter at all; she was communicating her current state of distress. Similarly, a young boy named Kyle, who was afraid of dogs, would shout "No dogs! Dogs bite!" while standing on the edge of a sailboat. His father understood this wasn't a random outburst, but a complex communication. Kyle was expressing his fear, asking if it was safe to swim, and seeking reassurance all at once. By listening beyond the literal words, we can begin to understand the rich, associative language of the autistic mind.

From Obsessions to Enthusiasms: The Power of Passion

Key Insight 3

Narrator: Intense, focused interests are a hallmark of autism. While often labeled as "obsessions" or "fixations" to be discouraged, Prizant urges us to see them as "enthusiasms"—powerful engines for learning, connection, and joy. These passions provide a sense of predictability, control, and competence in a world that often feels chaotic. Rather than dismantling these interests, the wisest approach is to build upon them.

Eddie, a fourth-grader, had no interest in his reading curriculum but was fascinated by the license plates in the school parking lot. His teacher, Kate, decided to lean into this enthusiasm. She helped Eddie create a project where he photographed every car and license plate, interviewed the staff members who owned them, and compiled the information into a PowerPoint presentation for his class. Suddenly, Eddie was engaged in reading, writing, research, and social interaction, all driven by his passion for license plates. His academic skills and self-esteem soared. Enthusiasms are not a distraction from learning; for many on the spectrum, they are the most powerful pathway to it.

The Disability of Trust: Navigating a Frightening World

Key Insight 4

Narrator: Prizant posits that a core challenge of autism can be understood as a "disability of trust." This is a three-fold struggle: difficulty trusting one's own body, which can feel unpredictable due to motor and sensory issues; difficulty trusting the world, where unexpected changes can feel like a profound betrayal; and difficulty trusting other people, whose social cues and intentions can be mystifying. This lack of trust generates a constant state of fear and anxiety, and many autistic behaviors are simply attempts to regain a sense of control.

The story of Dennis, a twelve-year-old at a summer camp, shows the devastating effect of broken trust. He had been looking forward to a trip to an amusement park for days. When the bus arrived and the driver bluntly announced the park was closed, Dennis's world shattered. The broken promise triggered an explosive meltdown, and he physically lashed out at the counselor he trusted most. His reaction wasn't one of a "spoiled brat," but of someone whose fragile sense of order and safety had been violated. To support someone with autism is to become a reliable, predictable, and trustworthy presence in their life, helping them navigate a world that often feels unsafe.

The Echoes of Emotion: How the Past Shapes the Present

Key Insight 5

Narrator: For individuals with autism, emotional memories can be intensely powerful and vivid. An experience isn't just recalled; it can be fully relived, with all the original feelings of joy, fear, or pain. These emotional imprints can be triggered by a sight, sound, or even a single word, leading to behaviors that seem inexplicable in the present moment.

Julio, a non-speaking four-year-old, would have a full-blown panic attack every time his parents' car stopped at a particular intersection. His parents were baffled until his father made a connection: the corner had a white stucco building that looked just like the medical clinic where Julio had a traumatic experience with an IV needle months earlier. The building was a trigger, causing Julio to relive the terror of that day. Understanding this allows for a compassionate response. Instead of punishing the behavior, the goal becomes to avoid the trigger or, when that's not possible, to create new, positive emotional memories that can override the painful ones, such as playing a child's favorite music in a feared location like a dentist's office.

The Real Experts: Centering Autistic Voices

Key Insight 6

Narrator: While professionals and parents have valuable knowledge, the true experts on autism are autistic people themselves. Their lived experiences offer insights that no amount of observation or research can provide. Uniquely Human champions the voices of autistic advocates like Ros Blackburn, who explains that her need to jump on a trampoline isn't a silly behavior, but a vital coping mechanism for managing the constant, overwhelming anxiety she feels.

Stephen Shore, a professor of special education who is also autistic, was recommended for institutionalization as a child. His parents ignored this advice and instead focused on his strengths and provided immense support. He now emphasizes that parents should have high expectations, but also provide the high level of support needed to meet them. These experts teach us that autism is not a life sentence of doom, but a different way of being that comes with its own unique strengths and challenges. Their core message is consistent: focus on what people can do, not what they can't, and build a world that accommodates their needs.

Conclusion

Narrator: The single most important takeaway from Uniquely Human is that autism is not an illness to be cured, but a different way of being human. The most profound and effective change we can make is not in the autistic person, but in ourselves. It requires a radical shift in perspective—from trying to manage and control behaviors to seeking to understand the person and their experience of the world.

The book leaves us with a powerful challenge, best captured by the wisdom of a Maori elder who told Dr. Prizant, "in order to advance the mind, we must first energize the spirit." This is the heart of the matter. Instead of asking how we can make an autistic person more "normal," we should be asking: How can we build trust? How can we foster joy? How can we support their passions? How can we help them feel safe and understood? By asking these questions, we move beyond mere therapy and begin the essential human work of connection.

00:00/00:00